EEG. That acronym is one that I never want to hear again but will likely have to hear it a few more times throughout Bren's life.
EEG = Electroencephalography. Or I as like to call it, the thing that makes my child cry uncontrollably. When conducting an EEG, they have to put leads on your head. These leads require glue, lots of glue. They also require pressurized air. Bren HATES the sound of the pressurized air and he screams and screams while they put them on. Then when it comes times to take them off, he screams from them pulling his skin and what little hair he has on his head.
The EEG measures brain activity. Bren's would tell us if he was having seizures. I think that was the scariest thing. Finding out that my son was having seizures was scary and hard to deal with. I had no idea how to handle seizures. I knew there was medications but that as about it. I had no idea how to physically tell if my son was seizing. So in a way, the EEG was helpful, but I wish my son wasn't having seizures at all.
Each EEG Bren has had, has shown improvements and the absence of seizures. Every time I hear Bren has not had seizures, it is like music to my hears. I breathe a little better and smile a little more. The worry decreases and the hope increases. Bren's EEGs still show some abnormalities which essentially means he is predisposed to seizures. So even though he isn't having any, he is still likely to get them.
EEGs are rough. The putting on and off of the leads cause my son pain. When the leads are on, my son looks goofy. He does not seem to mind them which is good. EEGs are rough but they are so helpful in learning how to best help my son.
As much as I hope EEGs are not part of my son's life forever, I know they are not an inherently bad thing. In fact, they are a good thing in helping determine where we go next.
EEG = Electroencephalography. Or I as like to call it, the thing that makes my child cry uncontrollably. When conducting an EEG, they have to put leads on your head. These leads require glue, lots of glue. They also require pressurized air. Bren HATES the sound of the pressurized air and he screams and screams while they put them on. Then when it comes times to take them off, he screams from them pulling his skin and what little hair he has on his head.
The EEG measures brain activity. Bren's would tell us if he was having seizures. I think that was the scariest thing. Finding out that my son was having seizures was scary and hard to deal with. I had no idea how to handle seizures. I knew there was medications but that as about it. I had no idea how to physically tell if my son was seizing. So in a way, the EEG was helpful, but I wish my son wasn't having seizures at all.
Each EEG Bren has had, has shown improvements and the absence of seizures. Every time I hear Bren has not had seizures, it is like music to my hears. I breathe a little better and smile a little more. The worry decreases and the hope increases. Bren's EEGs still show some abnormalities which essentially means he is predisposed to seizures. So even though he isn't having any, he is still likely to get them.
EEGs are rough. The putting on and off of the leads cause my son pain. When the leads are on, my son looks goofy. He does not seem to mind them which is good. EEGs are rough but they are so helpful in learning how to best help my son.
As much as I hope EEGs are not part of my son's life forever, I know they are not an inherently bad thing. In fact, they are a good thing in helping determine where we go next.
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