I’ve been meditating over Romans 5:3-5 over the last few months. Even in
the midst of problems and trials God is so very faithful. Drew
and I have seen God show up in big ways the last few weeks. And I would
love to share with you how we have seen Him, so please ask if you are
curious. Now, that doesn’t mean we haven’t felt anger, hurt, confusion
and a mix of other emotions, but we have always been able to come back
to these verses and know that good will come out of the hard stuff. We
know how dearly God loves us. We know God will do big things with Bren’s
life, even if it’s not what we expected.
Parenting a child with special needs is one of the hardest yet most joyful things I have done. I have loved watching my child overcome milestones and obstacles. It brings me so much joy to watch my child be so proud of himself. The constant need for therapies, the "extras" that have to go with us wherever we go, the uncertainty of what the future holds, and all the times we have heard "we will just have to wait and see" are some of the hardest parts of this journey. I asked some of my fellow superhero parents what they wish the world knew about raising a child with special needs and this is what they said: 1. You likely do not realize all the extra things that happen in our day that take up time . There are extra feeding times, equipment to haul around, catheters to change, therapies to do, diapers to change well past the "normal" diaper age, extra dishes, extra food to make, and phone calls and emails to specialists. These are just some of the extra t...
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