Skip to main content

Romans 5:3-5

I’ve been meditating over Romans 5:3-5 over the last few months. Even in the midst of problems and trials God is so very faithful. Drew and I have seen God show up in big ways the last few weeks. And I would love to share with you how we have seen Him, so please ask if you are curious. Now, that doesn’t mean we haven’t felt anger, hurt, confusion and a mix of other emotions, but we have always been able to come back to these verses and know that good will come out of the hard stuff. We know how dearly God loves us. We know God will do big things with Bren’s life, even if it’s not what we expected.

Comments

Popular posts from this blog

What We Wish You Knew

 Parenting a child with special needs is one of the hardest yet most joyful things I have done. I have loved watching my child overcome milestones and obstacles. It brings me so much joy to watch my child be so proud of himself. The constant need for therapies, the "extras" that have to go with us wherever we go, the uncertainty of what the future holds, and all the times we have heard "we will just have to wait and see"  are some of the hardest parts of this journey.  I asked some of my fellow superhero parents what they wish the world knew about raising a child with special needs and this is what they said:  1. You likely do not realize all the extra things that happen in our day that take up time . There are extra feeding times, equipment to haul around, catheters to change, therapies to do, diapers to change well past the "normal" diaper age, extra dishes, extra food to make, and phone calls and emails to specialists. These are just some of the extra t...

A Letter To My Kiddo With Disabilities

Hey Kiddo,  When your dad and I first found out you were going to be part of our family; I couldn’t stop myself from dreaming and having goals for you. I was excited to watch you play soccer and be in the band. I was excited for you to love reading just as much as me. I even thought about what your long term future would hold and if you would get married and have your own kids.  The day of your birth was one of the happiest but also the scariest day of my life. We almost lost you. But thanks to an awesome, loving, gracious God and your amazing doctor, you were able to stay here on Earth with us. You survived our nightmare. You were not given very good outcomes in the NICU but that has never stopped you from progressing and flying past the expectations they put on you.  My dreams for you changed, that day in the NICU when they told us you have HIE and likely will develop CP and a list of other diagnoses and to never expect you to lead a “normal” life. Instead of dr...

NICU

The NICU. This is one post I wish I didn't have to write. And I suppose I do not really have to, but it is such an important piece to this story, that it felt wrong to leave it out. We spent 19 days in the NICU. 19 days. Those were the longest 19 days of my life. We arrived there just hours after Bren was born. He was started on a cooling treatment. This treatment cooled Bren's body down but the true intent was to stop any secondary brain damage from happening. Cooling treatment lasts for 72 hours. Bren was scheduled to end this treatment and start warming on Saturday morning. Bren had a rough time warming up and did not actually complete the treatment until Sunday afternoon. 4.5 days. That's how long the treatment took. That's how long it took for me to be able to hold my baby boy. You see, I wasn't allowed to hold him when he was cooling because holding him would allow his body to warm up too much. That was hard. Really hard. I couldn't hold and comfort my b...